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CJD Support Group Network Australia
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  • What is CJD?
    • Forms of CJD
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    • Diagnosing CJD
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      • How we can help
      • Request an information package or join our mailing list
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      • What we can expect
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      • Grief
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      • Human Pituitary Hormone Recipients
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Make a donation to support CJD Research in Australia or to assist the work of the CJD Support Group Network supporting all Australians affected by CJD and other prion diseases.

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Buy a CJD Support Group item to help raise awareness and funds. Items start at $2 plus postage.

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News & Events

  • International CJD Awareness Day awareness campaign on November 12th
  • Memorial Wall 2024
  • Link to article – Runners take to the road to raise awareness for CJD

Connect with us

  Join our private Facebook Group to communicate with other families

CJDSGN FACEBOOK Page for Updates

CJD Support Group Network

6 days ago

CJD Support Group Network
Our ANCJDR team was dressed in all orange yesterday in honour of CJD Awareness Day ☕🧡Thank you to the CJD Support Group Network and all our collaborators and supporters who allow our team to collect information for public health surveillance and epidemiology research of Creutzfeldt-Jakob disease.Learn more about the ANCJDR ➡️ florey.edu.au/our-research/scientific-facilities-and-research-services/australian-national-cjd-re... ... See MoreSee Less

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CJD Support Group Network

7 days ago

CJD Support Group Network
Today is International CJD Awareness Day Join us 'Globally United for prion disease awareness' by sharing the link to our global video. ... See MoreSee Less

Video – Globally united for prion disease awareness – CJDISA

cjdisa.com

This website provides information about prion disease, prion disease research, and related subjects. All information posted is for educational and informational purposes and it is not intended as a su...
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CJD Support Group Network

7 days ago

CJD Support Group Network
In honour of International CJD Awareness Day, today, 12th November please spare a minute to remember some of the 80 Australians lost to prion disease each year. 'In the sky of a million stars' ... See MoreSee Less

Memorial Wall 2024 – CJD Support Group Network Australia

www.cjdsupport.org.au

© 2024 CJD Support Group Network Australia. The CJDSGN acknowledges the funding provided by the Department of Health that assists towards the cost of this website. Disclaimer Privacy Policy
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CJD Support Group Network

1 week ago

CJD Support Group Network
12th November, International CJD Awareness Day. Please use this link to download all the social media tools to help promote awareness of prion disease, our global video which we hope you will share, a poster to print and display in your work place, school, university or lab. Zooming this week use our background, add to your LinkedIn or instagram posts. ... See MoreSee Less

International CJD Awareness Day awareness campaign on November 12th – CJD Support Group Network Australia

www.cjdsupport.org.au

International CJD Awareness Day is November 12th Be a part of our awareness campaign for social media #cjdawareness #priondiseaseawareness Post and share that you are ‘Globally united for prion dise...
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CJD Support Group Network

2 weeks ago

CJD Support Group Network
Please share this infographic to promote knowledge of prion disease leading up to 12th November, International CJD Awareness Day ... See MoreSee Less

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© 2024 CJD Support Group Network Australia.
The CJDSGN acknowledges the funding provided by the Department of Health
that assists towards the cost of this website.
Disclaimer Privacy Policy

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Close Menu
  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
      • Contact Us
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
      • Contact Us
    • Health care professionals
      • Education program
      • Handbook
      • Contact Us
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Clinical Workshops
    • Annual National CJD Conferences
      • 2023 14th Annual National CJD Conference
    • PRNP Genetic testing
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Australian research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • CJDSGN Research Funding
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact